![]() ![]() Lisa Sanders, writer of the popular New York Times Magazine column “Diagnosis.”ĭr. Harnessing the power of social media, her case would be presented by Dr. ![]() ![]() I n 2018, Angel was approached about participating in a revolutionary experiment in medicine. But with such constant, agonizing pain, it seemed beyond reach. Angel, now 23 years old, wanted nothing more than to live a normal life: to finish nursing school, get married and have children. The doctors monitored her kidneys for damage but had no solution for her excruciating pain, which only increased in frequency and severity over the next nine years. She was tested repeatedly for strep, lupus and thyroid disease, and the results were all negative.Īs the years passed, Angel was admitted to the hospital more than 20 times. But try as they might, the doctors couldn’t find the source. Intravenous fluids flushed the enzymes out of Angel’s system, relieving her pain. They tested for an enzyme called creatine kinase (CK) while there is always some CK in the bloodstream since muscle tissue is constantly breaking down and rebuilding, normal levels are usually between 96 and 140 units per liter. She ended up in the emergency room, where doctors found her urine to be dark, the color of tea, evidence of muscle breakdown. The pain started when Angel was 14, unbearable pain in her legs that woke her in the middle of the night. ![]()
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